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It was lifted from a CDC document during the AIDS crisis. Patient Zero, which may be the only term from the science of epidemiology to have breached the pop culture divide, is a misnomer. There’s something you should know about the name of this podcast. This is a show about the line that divides medicine and culture, about the spaces where people and pathogens collide. You're just bored or you're depressed because you're just a housewife.Īnd charlatans have stepped into the vacuum to to prey on the patients who are desperate for answers.Ĭhuck Raison: Anything that's too good to be true in medicine is too good to be true.
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Wendy Murray: She literally had doctors saying, oh, just go play tennis. Patients have stumbled in, unsure of who to trust or what to believe. Scientists have spent whole careers in this void trying to fill the gaps.Īllen Steere: Lyme disease is a microcosm of what we see in the country. That's where my colleague Hannah wound up when she was diagnosed with Lyme a couple of years ago. Monica Gulia Nuss?: We have a question for every answer. John Auccot: It's okay to tell patients you don't know how. Monica Embers: I don't think we have enough data to determine that. But when it comes to Lyme disease, the illusion seems especially thin, like the guts of the system are exposed.Ĭhuck Raison: We don't know how it works. There are lots of diseases that leave us with more questions than answers. Hannah McCarthy: I'm already less likely to tell you that much. Taylor Quimby: Would you be more or less likely to trust a doctor in the future? Lab coats, clipboards that roll of crinkly paper on the exam room table, all part of a system that seems tidy and well understood. For those of us lucky enough to grow up healthy, the procedures of Western medicine can be oddly reassuring. This whole experience made me feel crazy and like I'm a hypochondriac. I'd never seen a doctor imply mistrust in another doctor before. And she kind of just short of rolled her eyes. It wasn't explicitly stated to me that way, but it was a it was a younger, very fresh for his doctor, who is seeing the next time. Like that's a bad thing to be a Lyme doctor. And I was told that the doctor who saw me before was a, quote, Lyme doctor. And I'm told that I might never have had Lyme to begin with.
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This is not me going to my primary care person. Hannah McCarthy: They I have a different doctor this time. Taylor Quimby: And what did they tell you? I was told that I had Lyme disease and that they were gonna put me on doctor cycling. Taylor Quimby: What was their first guess? Hannah McCarthy: One of those minute clinic. Hannah McCarthy: Convenient M.D., I want to say. Taylor Quimby: What kind of clinic was it? Hannah McCarthy: Two weeks of that before I finally went to a clinic. Hannah McCarthy: I wanted to sleep all the time. And I had a rash oval ish, circular ish rash. Hannah McCarthy: I was completely exhausted. Taylor Quimby: Let's start with symptoms, OK? What were they?